Sorry for the delay in getting the pictures posted from transplant day. I was having PC issues.
We're 5 days post transplant now. Kristine was feeling pretty good yesterday and the day before other than a little nausea, annoying headache, some body aches and stiff neck. However, she was able to get out and walk almost a mile each day (not all at once, she walks 2-3 times a day). The doctors like her to walk as much as possible to reduce muscle atrophy and body aches from lying in bed all day.
Yesterday, Kristine and I were having a discussion about those ever dreadful mouth sores. We were wondering if maybe she bypassed getting them. We were sad to learn that most patients develop them about two weeks post chemo or once their WBC (white blood count) reaches zero or near zero. We also learned that those sores develop inside the throat as well AND that's when the real nausea and tummy issues kick in.
While I was visiting her this past weekend, the doctor said it is quite common for transplant patients to stop eating completely for about two weeks due to the nausea and mouth sores.
This morning Kristine was in terrific spirits. All smiles. However, that didn't last long. Around 9:30AM, Kristine informed me that she thinks the mouth/throat sores are coming. It is beginning to hurt when she swallows fluids or eats. She said the inside of her mouth feels raw and bumpy (from the skin cells shedding). She has also been feeling more nauseaed than before.
She's been sleeping most of the afternoon. Many of you may find this amusing or even silly, but Kristine and I stay on Skype most of the day. From about 8am until one of us falls asleep at night. LOL!! She HATES being alone in the hospital. She has begun feeling a bit depressed over it. I've been trying to keep her spirits up, but maybe some of you can send Kristine some well wishes via this blog, email, text message, facebook, or even drop a card in the mail to her. She really misses Kahlen and Logan and wants nothing more for this journey to be over. The next couple of weeks are going to be very rough, both physically and emotionally, so well wishes and prayers would be appreciated.
Thank you Deb, for the nice card you sent. I put it up in her room.
Tomorrow I will share some info (about stem cell transplantation) with you that I received from Dave and Kristine while I was there. There's just not enough time for me to add that info today.
As always, please continue to pray and send positive thoughts Kristine's way. She really needs all her Prayer Warriors out there routing for her. Much love, thanks and blessings to you all!
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