Since Kristine was released from UCLA Medical Center on October 27th, we have seen a significant decline in her health. Her breathing has become more difficult, her heart rate has increased, her weight has dropped, her cough is more persistent, and she doesn't eat or sleep well.
My parents, my sisters and our families, and Dave's family are all gathering together for Thanksgiving this year and hope this will help boost Kristine's spirits. As you can imagine, Kristine is frightened of what may come and is so exhausted from everything she has endured. She's told me she's so tired of being "like this" and she's scared. We are all terrified and praying for a miracle.
We are hopeful that miracle comes in the form of a positive response to the IL2 injections.
Dr. Paquette's appeal to the insurance company was approved for the outpatient injections of Interleukin-2, a clinical trial being tested for GVHD of the lungs. We're just waiting for the injections to arrive so that Kristine can start this new treatment. Please pray this treatment will be successful!
I want all of you to know, though Kristine is terribly ill, she's still here with us and it would do her a world of good if friends and family came to visit her. Throughout her journey, we have seen a decline in the number of visitors as people find it difficult to see Kristine in her weakened state. Please know that Kristine is still the same person on the inside. Her mind and memories are still in tact. I would hate to know that any of you may find yourselves regretting that you didn't take the time to go see her when you had the chance.
To those of you who have remained a constant in her life, I cannot thank you enough for your support. You have been a tremendous help to Kristine, Dave, and our families. Thank you, thank you, thank you!
Today, I want to send out a big hug and thanks to Stacie Baker for taking the reins on the party planning and execution of today's events surrounding Kahlen's 5th birthday celebration. Without you, this event would have been next to impossible to put together.
Again, lots of prayers and positive thoughts for Kristine!! Please don't give up on her, she still has fight left in her! Never give up!
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